Hi good friends, I hope you all have been properly and that you are kicking off summertime in the most effective way doable!
So several of you have arrived at out to inquire how Dominic is carrying out and when I share a speedy picture on Instagram stories occasionally, I required to pop in speedily to give you an update.
Considering the fact that I very last wrote, Dominic has concluded cycles two and 3 of chemotherapy. Both manufactured him sick one day of the remedy but with a tweak of the nausea meds, he was emotion greater.
His new favored in-medical center action? New music therapy! He receives these types of a massive kick out of actively playing the instruments 😁
He is also Incredibly into day by day bingo 😍
On the past day of his second cycle, he had the option to tour the helicopter pad on the hospital roof, which he Liked. The view was awesome and we acquired plenty of fun information (mother loves a good discipline vacation, ha)!
While home, he carries on to perform and really significantly enjoys daily life as normal, including heaps of exterior time now that it’s wonderful out!
Amongst rounds two and 3 of chemotherapy, we traveled to New York for Dominic to be viewed at Memorial Sloan Kettering, where they have a workforce of pediatric oncologists who specialize in neuroblastoma.
He is becoming handled below their steerage, so considerably obtaining all of his chemotherapy below in Pittsburgh, but we will journey there for his tumor elimination operation.
We equally had our initially Uber experience, had Shake Shack for the to start with time (SO Good), and Dominic experienced his first stay in a hotel. A thriving trip, but there is certainly no put like household!
Our New Typical
We are obtaining very utilised to the indications of reduced hemoglobin (two days in a row of using a lot more drink breaks than regular whilst taking part in exterior? We guessed he was going to need blood when he went to his clinic appointment the following working day and, absolutely sure ample, he did) and minimal platelets (a lot more bruising). He has had various transfusions of equally because beginning this journey, so a fantastic massive thank you to everyone who has ever donated blood, as we are now so significantly a lot more acutely aware of the significance of this selfless act.
Hemoglobin, platelets, white mobile counts, neutrophils, and ANC numbers are now just prevalent dialogue in this article.
We have all kind of settled into our new program of treatment options, visits to the clinic, taking care of prescription drugs, line flushing, etcetera.
The most significant hurdle due to the fact this very last cycle of chemotherapy is that we have experienced to give Dominic each day pictures (vs the a person-time photographs right after the initially and next rounds) and it is the absolute worst. He has always hated photographs and he just dreads them, I get nervous, and it’s just a entire SCENE. The every day photographs have been utilized mainly because of his impending stem mobile harvest, to assure his counts ended up strong (see down below).
This coming week, Dominic will have a stem mobile harvest, in which they will insert a short-term line to extract stem cells (which will then be saved) need to he have to have them in any capacity throughout remedy down the highway. It is our hope that he would not, but they will be there if he does.
The subsequent enormous step is in two weeks when he will have his tumor removing surgical procedures. Pursuing the medical procedures, he will have another spherical of chemotherapy and then a several months just after that, a battery of assessments and scans to see where by we stand with the condition.
Make sure you proceed to pray that the cancer is responding to therapy, that the surgeons are able to remove the tumor securely and correctly, and that he has a reasonably quick recovery.
Pleasurable at Home…
A handful of additional images of the youngsters from current weeks ❤️
Wishing you all a exciting and safe commence to your summer time! ☀️❤️